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Kuwait highlights efforts to support Individuals with Down syndrome

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KUWAIT: Kuwait joined the global community on Friday in observing World Down Syndrome Day, a global initiative aimed at raising awareness about Down syndrome and promoting the inclusion of individuals with the condition in education, work, and society. The day encourages understanding and support for people with Down syndrome, helping them to become active members of society. Down syndrome is a genetic condition caused by an extra copy of chromosome 21. This leads to varying degrees of intellectual disabilities, developmental delays, and other health challenges. While the condition is lifelong, early intervention and comprehensive care can greatly improve the quality of life and help individuals with Down syndrome reach their full potential.

Comprehensive care from

Dr Laila Bastaki, Head of the Kuwait Medical Genetics Center, emphasized Kuwait’s commitment to providing comprehensive care for individuals with Down syndrome, starting even before birth. The center offers pre-implantation genetic diagnosis to help reduce the risks of having a child with Down syndrome. If a diagnosis is made during pregnancy, the center provides early guidance and continuous medical follow-up from infancy through adulthood. Dr Bastaki explained that the center focuses on preventing and managing common complications associated with Down syndrome, such as congenital heart defects, thyroid hormone deficiencies, celiac disease, obesity, Type 1 diabetes, hearing impairments, and mental health issues. Early detection is vital, and genetic testing during pregnancy and after birth helps in diagnosing the condition. Maternal age is a significant factor in the likelihood of having a child with Down syndrome. For women over 40, the risk increases, with 1 in 32 births involving Down syndrome. Globally, about 1 in every 800 births results in a child with the condition.

A person with Down Syndrome showcases his work as part of an exhibition organized by the Kuwait Down Syndrome Society.

A person with Down Syndrome showcases his work as part of an exhibition organized by the Kuwait Down Syndrome Society.

Supporting families

The Kuwait Down Syndrome Society plays a crucial role in supporting individuals with Down syndrome and their families. Mariam Al-Kandari, the society’s Secretary-General, shared that the organization provides a variety of services, including educational and vocational training, life skills development, family counseling, and advocacy for social inclusion. Physical activities are an essential part of the society’s programs, as they improve cognitive abilities, physical health, and social skills. The society organizes daily sports programs, as well as arts and music activities, which offer both cognitive and physical benefits.

In addition to educational support, the society helps prepare individuals for employment through workshops that teach job-related skills, professional behavior, and self-reliance. Al-Kandari highlighted the society’s collaboration with schools and government agencies to promote inclusive education, ensuring that individuals with Down syndrome have equal access to learning opportunities.

The society is also embracing technology to enhance the skills and communication abilities of individuals with Down syndrome. Al-Kandari noted that artificial intelligence (AI) tools are being used to improve communication skills and prepare individuals for modern work environments. “Our vision is to create an environment where every person with Down syndrome has the resources and support they need to thrive,” Al-Kandari said.

Advocacy for rights

Kuwait has made significant strides in raising awareness about Down syndrome and promoting inclusion. The Kuwait Down Syndrome Society is dedicated to advocating for the rights of individuals with Down syndrome, working to eliminate discrimination and empower them to fully participate in society. Currently, there are about 4,000 people in Kuwait living with Down syndrome, and approximately 400 individuals benefit from the services offered by the Kuwait Down Syndrome Society. The society continues to work on fostering inclusion and providing long-term support for individuals with Down syndrome in all areas of life.

World Down Syndrome Day, first launched in 2007 in Sydney, Australia, is now recognized worldwide. The day serves as a platform to promote understanding, acceptance, and inclusion for individuals with Down syndrome. Through continuous efforts in healthcare, education, and community support, Kuwait is working to ensure that individuals with Down syndrome are empowered to lead meaningful, fulfilling lives. — KUNA

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IICO launches food aid project for 240,000 displaced Gazans

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KUWAIT: The International Islamic Charitable Organization (IICO) has launched its “Takeyat It’aam Al-Ta’am” (Charitable Food Kitchen) project, aiming to reach 240,000 beneficiaries over the course of one month by distributing balanced meals in shelter centers. The initiative comes in response to the dire humanitarian conditions facing displaced people and refugees in Gaza due to the ongoing siege and conflict.

In a press statement issued Thursday, the organization said the project, which began on May 6 and will continue through June 5, aims to provide food security to the most vulnerable groups and alleviate their daily suffering under the current circumstances. The organization emphasized its particular focus on relief projects with direct impact, which help improve the lives of affected families and support their resilience.

The statement added that the initiative was launched in response to severe shortages in food supplies, a worsening humanitarian crisis, and rising malnutrition rates, particularly among children, pregnant women, and nursing mothers. It noted that most residents in camps and shelters rely almost entirely on humanitarian aid to meet their basic needs.

The organization explained that the project serves several key objectives, most notably: providing nutritious meals to those in shelters, ensuring they receive minimum daily dietary requirements, improving overall health, reducing nutrition-related illnesses, and offering psychological and emotional support amid the intense pressures and hardships they face. It further noted that “Takeyat It’aam Al-Ta’am” meals are prepared and distributed within the shelters in an organized and hygienic manner that preserves the dignity of recipients — especially vulnerable groups such as children, women, and the elderly, who are prioritized in distribution. This comes amid the rapid collapse of food supply chains within Gaza. — KUNA

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ktech becomes exclusive partner of Fraunhofer UMSICHT in Middle East

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Europe’s leader in applied environmental, safety and energy research to launch first and only academy

SULZBACH-ROSENBERG, Germany: In a landmark achievement for Kuwait’s knowledge economy, Kuwait technical college (ktech) has signed a strategic partnership with Germany’s Fraunhofer Institute UMSICHT, Europe’s leader in applied environmental, safety and energy research, to launch the institute’s first and only academy in the Middle East.

The strategic and exclusive partnership with one of the world’s leading applied research institutes aligns with the directive of His Highness the Amir of the State of Kuwait, Sheikh Meshal Al-Ahmad Al-Jaber Al-Sabah, to attract prestigious international institutions to the country. It reflects Kuwait’s national vision to establish itself as a regional hub for innovation, creativity and knowledge. Moreover, the partnership represents a meaningful step toward strengthening Kuwaiti-German relations, following the recent official visit of His Highness the Prime Minister Sheikh Ahmad Al-Abdullah Al-Ahmad Al-Sabah, to the Federal Republic of Germany.

The signing ceremony, held at Fraunhofer UMSICHT’s Sulzbach-Rosenberg headquarters, in the presence of ktech’s top management, including Meshari Ayman Boodai, Chairman, Board of Trustees; Noura Ayman Boodai, Vice President for Student Affairs and Registration; Abdulrahman Abdulqader Al-Ajeel, Vice President for Finance and Administration; Abdulwahab Ayman Boodai, Assistant Vice President for Student Affairs and Registration; and Nourah Amer Al-Oseimi, Assistant Vice President for Finance and Administration. Also, in attendance was Adel A Al-Ghenaiman, Consul General of the State of Kuwait in Frankfurt, representing the Ministry of Foreign Affairs.

This exclusive partnership marked a major milestone in ktech’s mission to bridge academic excellence with industrial relevance. This initiative will serve as a regional innovation and training hub for the entire MENA region, directly aligning with Kuwait’s Vision 2035 and its goals for sustainability, economic diversification and human capital development.

This transformational partnership brings to Kuwait the full weight of Fraunhofer UMSICHT’s technical infrastructure, which includes: Over 30,000 employees across Germany and the world; 76 institutes and research facilities; €3 billion operating budget; and cutting-edge research in green hydrogen, circular economy, carbon management local energy systems, cyber security, robotics engineering and waste recycling. These capabilities will now be embedded in Kuwait through ktech’s infrastructure, ensuring localized delivery of global expertise.

Commenting on the announcement, Meshari Ayman Boodai, Chairman of the Board of Trustees at ktech, stated: “This partnership reaffirms Kuwait technical college’s position as Kuwait’s leading driver of applied learning, professional education, local research support and sustainability-focused innovation. Hosting the institute’s only academy in the Middle East and one of seven worldwide, is a reflection of our vision to build an educated, technically skilled workforce capable of solving Kuwait’s, and the region’s, most pressing challenges.”

The Fraunhofer Institute’s presence in Kuwait will offer training programs and professional education co-designed by Fraunhofer researchers and delivered in collaboration with ktech’s academic and technical experts through the ktech Institute for Private Training. These programs will span key disciplines and offer multiple tracks for industry professionals, government officials, undergraduate and postgraduate students and academic researchers.

Adel A Al Ghenaiman, Consul General of the State of Kuwait in Frankfurt, praised the initiative: “Kuwait’s diplomatic missions abroad remain fully committed to supporting initiatives that serve our country’s interests and help develop education and knowledge exchange. We wish everyone continued success.”

Fraunhofer UMSICHT Director Matthias Franke added: “We are proud to begin this partnership with Kuwait technical college. This memorandum of understanding marks the start of a fruitful collaboration in applied research and development, focusing on areas such as the circular economy, clean hydrogen and sustainable local energy systems for industry.”

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Kuwait to introduce gene therapy for teens with blood disorders

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KUWAIT: Minister of Health Dr Ahmad Al-Awadhi announced on Friday that more than 40 successful stem cell transplant operations have been performed in Kuwait for children suffering from thalassemia and sickle cell anemia, noting that “these procedures are increasing due to advanced medical efforts and ongoing government support.” In his opening speech at the First Pan Arab Thalassemia and Sickle Cell Disease Awareness Conference, Dr Al-Awadhi also revealed that gene therapy for children over the age of 12 is under review in Kuwait as a promising treatment option for thalassemia and sickle cell anemia, and that it is expected to be available soon as part of the country’s national health plans. “This step will open new horizons for full recovery and improved quality of life,” he said, adding that it falls under a comprehensive national strategy aimed at easing the burden on patients and their families and enhancing their well-being.

He expressed Kuwait’s pride in its notable achievements in prevention, especially the premarital screening program, which has been implemented since 2009. He noted that more than 400,000 screenings have been conducted using the latest advanced diagnostic tools. In addition, a specialized genetic laboratory has been established to diagnose blood disorders using multiple modern genetic techniques, the latest of which is Next Generation Sequencing (NGS). He emphasized that the program’s success was proven in a scientific study published in 2019, which showed a significant drop of over 50 percent in the number of cases at risk of transmitting hereditary blood diseases among engaged couples.

This success has led to a noticeable decrease in new thalassemia cases diagnosed in newborns, children, and citizens in Kuwait. Consequently, the Ministry of Health decided to include residents in the premarital screening program. This resulted in a recently issued law mandating such screenings for residents prior to marriage.

Dr Al-Awadhi stressed the ministry’s strong commitment to enhancing services for these patients, including providing the latest internationally approved treatments for iron overload, a common complication from repeated blood transfusions. He reaffirmed the ministry’s dedication to introducing the latest globally approved treatments that reduce dependence on blood transfusions by stimulating red blood cell production in patients. Dr Al-Awadhi concluded by stating that these diseases affect not only individuals’ health but also impact families and society as a whole. “We reaffirm our commitment to supporting every scientific or humanitarian initiative that helps raise awareness, improve patients’ quality of life, and enhance efforts in early diagnosis and treatment,” he said. — KUNA

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